How We Help
The NFA is the UK's leading authority on Neurofibromatosis and we provide a range of support services to help the individual, their families and the professionals working with them.
The NFA Specialist Advisors
We emply a network of Advisors based in hospitals around the UK. To see if there is one in your area, please call us on 0208 439 1234.
Within this section, you will find our literature which can be ordered directly from our Head office or free to download. You will also find information regarding our Membership scheme.
INFORMATION REGARDING NF1
- Neurofibromatosis Type 1 - A Guide for Families
- Children and Neurofibromatosis Type 1 - A Guide for Parents
- Talking to Children about NF1
- NF1 - Information for Teachers
- Learning Difficulties Poster
- Achieving in spite of...- a booklet on specific learning difficulties
- Challenging Behaviour
- Developmental co-ordination Disorder
- Disorders of bone growth and soft tissue changes
- Congenital Pseudarthrosis
- NF1 and Scoliosis
- Optic Pathway Gliomas
- Polly's Best Friend - for girls under ten (contact office)
- The Winning Goal - for boys under ten (contact office)
INFORMATION REGARDING NF2
- Neurofibromatosis Type 2 - Information for patients
- Communication and NF2
- Coping with fatigue in NF2
- Help with speech difficulties in NF2
- Stereotactic radiosurgery and radiotherapy for NF2 vestibular Schwannomas
- The Auditory Brainstem Implant (ABI)
- The Hearing Therapist
- Tinnitus
- Understanding balance in NF2
- Vestibula Schwannoma
- Information for Patients & Professionals
COVERING BOTH NF1 & NF2
MEMBERSHIP
Membership of the NFA brings many benefits:
- Three newsletters per year
- A range of free fact sheets on NF1 & NF2
- Reduced costs to NF and fundraising events
- The opportunity to attend membership specific events
We have big plans for the development of our Membership, including on-line Members only pages, member driven events and the chance for our members to contribute to the development of the charity.
Membership subscription rates are as follows:
Individual Membership - £15.00 (18 and over)
Family Membership - £22.00
Concessionary Membership - £7.00 (if you are on income support/incapacity benefit)
To join, simply call 020 8439 1234 or email - mel@nfauk.org
CHARITY INFORMATION
Here, you can download our newsletters and audited accounts. In the meantime, to receive updates via your email, please email - mel@nfauk.org
The UK’s leading authority on Neurofibromatosis