Publications
Information about Neurofibromatosis Type 1 (NF1)
- Easy Read - The Doctor Says You Have Neurofibromatosis
- Neurofibromatosis Type 1 – A Guide for Families
- Segmental NF1
- Children and Neurofibromatosis Type 1 – A Guide for Parents
- A Child with NF1 – A Guide for Healthcare Professionals
- Talking with Children about Neurofibromatosis
- Optic Pathway Gliomas
- Disorders of bone growth and soft tissue changes
- Congenital Pseudarthrosis
- NF1 and Scoliosis
- Pain management
- Scanning Techniques
- Ask Doctor Sue – a compilation of Q&A’s
Learning and Behaviour in NF1
- NF1 – Information for Teachers
- Info for Parents to give to Teachers
- Learning Difficulties Poster
- About Learning Difficulties - Learning and Cognitive Difficulties in Neurofibromatisis Type 1*
- Challenging Behaviour
- Developmental co-ordination Disorder - Dyspraxia
- Polly’s Best Friend – for girls under ten
- The Winning Goal - for boys under ten
*We have the express permission from The Children's Tumor Foundation to include this factsheet on our website. We would like to thank the Foundation and particularly the authors: Sharon Watt, Jonathan Payne, Belinda Barton, Kathryn North and the team from the NF1 Learning Disabilities Clinic, The Children's Hospital at Westmead, Sydney, NSW, Australia.
Employment and NF1
Information about Neurofibromatosis Type 2 (NF2)
Coping with NF2
- Talking to children about Neurofibromatosis
- The Auditory Brainstem Implant (ABI)
- Communication and NF2
- Understanding balance in NF2
- Tinnitus
- Stereotactic radiosurgery and radiotherapy for NF2 vestibular Schwannomas
- Pain management
- Coping with fatigue in NF2
- Help with speech difficulties in NF2
- The Hearing Therapist
- Scanning Techniques
- Ask Doctor Sue – a compilation of Q&A’s
