Local Support Groups
People often join a local group to establish contact with others whose lives are affected by Neurofibromatosis, and to share their own experiences. Local groups can help to overcome the feelings of isolation often experienced by people with Neurofibromatosis and their families.
What does a local group do?
Local groups can:
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Raise awareness of Neurofibromatosis and the Neurofibromatosis Association locally.
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Share information and exchanging ideas at meetings.
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Develop mutual support between members (eg via a group contact list to enable members to support each other between meetings).
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Organise social activities.
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Press for better local services for people with Neurofibromatosis (campaigning).
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Fundraise
Who can get involved?
Local groups welcome:
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People with Neurofibromatosis.
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Parents of a person with Neurofibromatosis and other family members such as grandparents, brothers and sisters.
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Friends of families affected by Neurofibromatosis.
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Carers of a person with Neurofibromatosis.
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Local professionals such as doctors, nurses, teachers, social workers.
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Anyone interested in supporting the Neurofibromatosis Association.
How do I get involved?
Please contact 0208 439 1234 to find out if there is a group in your area. If you would like to start up a local group in your area, we can provide you with a wide range of support.
If local groups are not for you, why not join our network of volunteers?
For more information about local groups or volunteering, contact us at info@nfauk.org
The UK’s leading authority on Neurofibromatosis