Our Board is responsible for governance and the strategic direction of the charity. Membership of the Board is drawn from many walks of life to ensure we meet our agreed aims and objectives. Members of the Board give their time and expertise freely to the service of the charity, and we are grateful for their commitment.
Over the last few months, we have strengthened our Board of Trustees and now have an extremely rich mix of those with business, fundraising, financial and strategic knowledge combined with those who have direct experience of NF.
List of Trustees
Dr. Tim Corn
Chair of the Board of Trustees
Tim qualified in medicine at King's College Hospital and went on to become honorary consultant and senior lecturer at the Institute of Psychiatry, London. For the past thirty years, Tim has worked in medical research in the pharmaceutical industry and has been involved in introducing more than twenty new medicines for rare diseases, one of the the most recent being for childhood leukaemia. He has held a number of senior executive positions and currently sits on the Boards of several research-based organisations. This work has given him a broad understanding of working with teams from many disciplines, to serve the needs of people affected by rare conditions.
Prof. Rosalie Ferner
Consultant and Professor of Neurology at Guys and St Thomas's Hospital and Chair of the Medical Advisory Board of The Neuro Foundation. Professor Ferner has been national lead for the nationally commissioned NF1 service since 2009, and lead for the London NF2 service since 2010. The aim of the national neurofibromatosis services is to give expert, multi-disciplinary, holistic care to people with complex, multi-system disease. Her specialist clinical work is in tumour suppressor conditions – NF 1 and 2, Schwannomatosis and von Hippel Lindau disease.
Richard Goode is a fellow of the Royal Institution of Chartered Surveyors and has been managing director of Fletcher King PLC, based in London, for the last 15 years and specialises in commercial property fund management. He lives in Surrey with his wife and has 3 grown up children. His eldest son has NF1.
Michael has a son, Freddie, who was diagnosed with NF1 as a baby. He is a barrister specialising in planning, regulatory and public law. Michael has a Master's degree in Social and Political Science from the University of Cambridge, and read law at BPP University. Before entering the law, Michael served in the Household Cavalry for seven years, holding the rank of Captain. He remains in the Territorial Army working as a military press spokesman.
Michael has experience of public affairs, media engagement and charity law, and hopes to use these skills in support of The Neuro Foundation. His particular areas of interest are supporting and growing the advocacy and fundraising aspects of the charity.
Stewart, who has NF2 currently manages the Social Media Team at the National Disability Charity Scope having previously worked in Digital Communications for The Social Policy Think Tank the Joseph Rowntree Foundation where he began his career following a Masters Degree in International Business at Leeds Trinity. Stewart is also a fellow of the Social School for Entrepreneurs. Stewart joined the board of Trustees in 2010 because of his extensive knowledge and experience in the Digital Communications industry.
Emily was interested in becoming a Trustee when she heard there was a vacancy, bringing her experience of living with NF2 to the Board. She is interested in communication, both in promoting The Neuro Foundation and the work of the charity to outside bodies as well as engaging with members of The Neuro Foundation who may have issues or questions. As of May 2016 Emily has released her memoirs which focus on her NF2 Diagnosis.
Connect your social media account to Thunderclap to help us to shout about NF on World NF Day 2018