Our Board is responsible for governance and the strategic direction of the charity. Membership of the Board is drawn from many walks of life to ensure we meet our agreed aims and objectives. Members of the Board give their time and expertise freely to the service of the charity, and we are grateful for their commitment.
Over the last few months, we have strengthened our Board of Trustees and now have an extremely rich mix of those with business, fundraising, financial and strategic knowledge combined with those who have direct experience of NF.
List of Trustees
Dr. Tim Corn
Tim qualified in medicine at King's College Hospital and went on to become honorary consultant and senior lecturer at the Institute of Psychiatry, London. For the past thirty years, Tim has worked in medical research in the pharmaceutical industry and has been involved in introducing twenty new medicines for rare diseases, the most recent being for childhood leukaemia. He holds a number of senior executive positions and currently sits on the Boards of two research-based organisations. This work has given him a broad understanding of working with teams from many disciplines, to serve the needs of people affected by rare conditions
Professor Gareth Evans
Professor Evans has established an international reputation in the clinical and research aspects of cancer genetics, particularly in neurofibromatosis and breast cancer. He has developed a clinical service for cancer genetics in the North West Region of England, which is nationally regarded. Gareth is a well-known and respected speaker at National and International meetings and conferences as well as an author of many research publications and articles. He led the successful bid for the nationally funded NF2 service which started in 2010 and is involved in the national complex NF1 service.
Michael has a son, Freddie, who was diagnosed with NF1 as a baby. He is a barrister specialising in planning, regulatory and public law. Michael has a Master's degree in Social and Political Science from the University of Cambridge, and read law at BPP University. Before entering the law, Michael served in the Household Cavalry for seven years, holding the rank of Captain. He remains in the Territorial Army working as a military press spokesman.
Michael has experience of public affairs, media engagement and charity law, and hopes to use these skills in support of The Neuro Foundation. His particular areas of interest are supporting and growing the advocacy and fundraising aspects of the charity.
Stewart, who has NF2, currently works for the Joseph Rowntree Foundation where he is a Digital Communications Officer. His role involves the management of key social media channels, search engine marketing, paid search, the day-to-day management of their website and reporting on its performance.He joined the Board of Trustees in 2010 whilst studying for a Master's degree in International Business. His dissertation focused on the effect of Digital Marketing on small/medium sized charities and used The Neuro Foundation’s Facebook page as a case study. Stewart was brought on board as a Trustee because of his extensive knowledge of the digital industry and project managed the redevelopment of our website prior to its launch in March 2013.Stewart is also a Fellow of the Social School for Entrepreneurs.
Emily was interested in becoming a Trustee when she heard there was a vacancy, bringing her experience of living with NF2 to the Board. She is interested in communication, both in promoting The Neuro Foundation and the work of the charity to outside bodies as well as engaging with members of The Neuro Foundation who may have issues or questions. As of May 2016 Emily has released her memoirs which focus on her NF2 Diagnosis.
Richard Goode is a fellow of the Royal Institution of Chartered Surveyors and has been managing director of Fletcher King PLC, based in London, for the last 15 years and specialises in commercial property fund management. He lives in Surrey with his wife and has 3 grown up children. His eldest son has NF1.