World NF Awareness Day

On 17th May 2017, we celebrate World NF Awareness Day with the aim to raise awareness of a genetic condition of which many people are unaware, despite it being more common than Huntington’s Disease, Cystic Fibrosis and Muscular Dystrophy combined. 

What is NF?

Neurofibromatosis (NF) is a genetic condition that affects 2.5 million people worldwide.

It causes tumours to grow in the nerve tissue throughout the body and as of yet, there is no cure. 

Our aim at The Neuro Foundation is to help improve the lives of people living with NF in the UK. 

Share Your Selfie 2017

To show your support for people living with Neurofibromatosis, we've made our World NF Awareness Day Poster downloadable! 

Take a selfie, and share it with us on Facebook, Instagram or Twitter with the hashtag #WorldNFDay17 and #EndNF 

Click 'Download Poster' and then right-click the image and select 'Save As' to download.​


Shine A Light

For World NF Day 2017, we are teaming up with the American NF charity, Children's Tumor Foundation to take part in a global campaign to light up buildings across the UK blue and green to Shine A Light on Neurofibromatosis. Click the image to find out more.


Read More NF Stories

Click the image below to visit our Story Hub to where you can find personal stories of people living with Neurofibromatosis. 

Connect your social media account to Thunderclap to help us to shout about NF on World NF Day 2017