Knowledge Hub

Welcome to the Knowledge Hub. Here you can access all our available information and resources.

Title Description
General Information Leaflet

A leaflet explaining the work of The Neuro Foundation

Glossary of Terms Associated with NF

A-Z of terms associated with Neurofibromatosis, Schwannomatosis and Legius Syndrome


Neurofibromatosis Research Reports

NF1 Research on Malignant Tumours

Findings of NF1 study at Guy's and St. Thomas’ NHS Foundation Trust

NF2 Sorafenib Report

Findings of NF2 study at Peninsula College of Medicine and Dentistry


NF1 Knowledge Hub

Find out more about NF1
Click here to see information on NF1, including Learning and Behaviour, Employment and advice for teenagers and children.

NF2 Knowledge Hub

Find out more about NF2
Click here to see information on NF2, including advice on Mosaic NF2, employment and help with communication difficulties.

Schwannomatosis & Legius Syndrome Knowledge Hub

Find out more about Schwannomatosis and Legius Syndrome
Click here to find out more Schwannomatosis & Legius Syndrome.
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