Story Hub

We asked you how Neurofibromatosis has shaped your life and you sent us your personal stories via our #ShareYourStory page. Here we have collated your stories to share with the wider NF community so others can know that they are not on this journey alone.

Tell us your Story

Featured Story

"Ayrianna is a fighter for sure"
Crystal shares her daughter, Ayrianna's story.
Crystal's story

"...she is my warrior"

Gemma's story {mx_caption}

"NF has definitely affected me..."

Claire's story {mx_caption}

"I have NF but it's not going to beat me!"

Jaycee's story {mx_caption}

"It does not define me."

Sarah's story {mx_caption}

"he doesn't let it beat him"

Luke's story {mx_caption}

"I was diagnosed with NF1 when I was 6yrs old"

Natalie's story {mx_caption}

"...I knew something wasn't right"

Sophia & Harvie's story {mx_caption}

"...a lot of the time I feel alone"

Noreen's story {mx_caption}

"We had never heard of NF1 before"

Claire's story {mx_caption}

"I was diagnosed with NF1 when I was 16"

Sarah's story {mx_caption}

"He is generally a happy, lively boy..."

Lauren's story {mx_caption}

"Polly is our hero and a true inspiration..."

Emily & Polly's story {mx_caption}

"I am not defined by it"

Duma's story {mx_caption}

"I might have NF but NF doesn't have me!"

Lisa's story {mx_caption}

"I couldn't be without him...sick or healthy."

Lucy's story {mx_caption}