Story Hub

We asked you how Neurofibromatosis has shaped your life and you sent us your personal stories via our #ShareYourStory page. Here we have collated your stories to share with the wider NF community so others can know that they are not on this journey alone.

Tell us your Story

Featured Story

"Ayrianna is a fighter for sure"
Crystal shares her daughter, Ayrianna's story.
Crystal's story

"I know that I am beautiful, and I am somebod"

Alecia's story {mx_caption}

"Not knowing it could affect them as well. I d"

Kai's story {mx_caption}

"Emilio is our inspiration, and truly inspirin"

Emilio's story {mx_caption}

"why was it me who had this condition"

Grace Ryder's story {mx_caption}

"No matter your condition your still beautiful"

Nat Costin's story {mx_caption}

"I was diagnosed with NF1 when I was 5"

Katie Swallow's story {mx_caption}

"You just have to face each day with a smile"

Olivia Curtis's story {mx_caption}

"My doctor said ''you have to learn to live..."

Kamil Szczepankiewicz's story {mx_caption}

""I am a kind caring person who just wants to"

Charlotte Targgart's story {mx_caption}

"We are so proud of her."

Emma and Kiki’'s story {mx_caption}

"I try and not let this condition stop stop me"

Lydia's story {mx_caption}

"many doctors have told me it’s not NF1"

Michele's story {mx_caption}

"helped me through the dark times"

Richard's story {mx_caption}

"We have been together for twelve years now"

Gerald's story {mx_caption}

"...she is my warrior"

Gemma's story {mx_caption}