We asked you how Neurofibromatosis has shaped your life and you sent us your personal stories via our #ShareYourStory page. Here we have collated your stories to share with the wider NF community so others can know that they are not on this journey alone.Tell us your Story
"Ayrianna is a fighter for sure"Crystal shares her daughter, Ayrianna's story.
"why was it me who had this condition"
"No matter your condition your still beautiful"
"I was diagnosed with NF1 when I was 5"
"You just have to face each day with a smile"
"My doctor said ''you have to learn to live..."
""I am a kind caring person who just wants to"
"We are so proud of her."
"I try and not let this condition stop stop me"
"many doctors have told me it’s not NF1"
"helped me through the dark times"
"We have been together for twelve years now"
"...she is my warrior"
"NF has definitely affected me..."
"I have NF but it's not going to beat me!"
"It does not define me."